Wednesday, June 16, 2010

Help WAG Help "The Young Faces of ALS"

For those of you not familiar, ALS (commonly referred to as Lou Gehrig’s disease) stands for Amyotrophic Lateral Sclerosis. In short, ALS is a progressive, fatal, degeneration of motor neurons, the nerve cells in the central nervous system that control voluntary muscle movement. People who suffer from ALS slowly become paralyzed while all mental capacity remains intact. It’s a disease that you wouldn’t wish on your worst enemy.

ALS has commonly been referred to as Lou Gehrig’s disease after the iconic baseball player died of the disease in 1941, just two short years after his initial diagnosis. He is remembered as one of the greatest to ever play the game, and is probably most respected for his record of playing in 2,130 consecutive games, as well as his unrivaled sportsmanship and class. In 1939, at the age of 35, his streak came to an end when he became too physically disabled by ALS to continue playing. Gehrig, known as a power hitter and RBI king, suddenly felt his strength and balance fading. Athletic abilities that were once second nature to him quickly began to fade. After a trip to the Mayo Clinic, he learned his diagnosis and retired July 4, 1939 after delivering the most storied speech in baseball history. His record remained for 56 years, until Cal Ripken, Jr, broke it in 1995.

One of the most unfortunate aspects of ALS, is that “this disease is not incurable, it’s underfunded”, and in the 69 years since Lou Gehrig passed away, the prognosis for patients diagnosed today, in 2010, has barely improved.

However, an organization called ALS Therapy Development Institute (TDI) is trying to change that. ALS TDI is the world’s first non-profit biotech, and their sole mission is to develop effective treatments as soon as possible to stop ALS.

WAG supports ALS TDI, specifically their new “Young Faces of ALS” campaign. The goal of the Young Faces campaign is to change the perception of this disease, raise awareness, and ultimately raise the money that would lead to a cure. ALS is not a disease that only afflicts people who have lived a long, full life, it strikes an alarming number of young people as well; people who have barely had a chance to start living.

At this point, what ALS needs is awareness and FUNDING. WAG is doing our part by teaming up with the amazing people at ALS TDI, as well as local ALS patient, Corey Reich (whose family has helped raise over $1 million for ALS TDI), age 24, to help launch their “Young Faces of ALS” campaign on Facebook. It is our goal to help ALS TDI and the Young Faces campaign educate as many people as possible about this disease, because once you know about ALS, it is impossible not to be moved to help.

Corey is my friend from high school and was diagnosed our junior year of college at age 21. Since then, I personally have attended fundraisers and awareness events, and simply educated myself so I can talk with people I encounter and spread the word on ALS, what is being done, and what CAN be done. Now working at WAG, I work with people who know how to draw attention to a product. We are using our resources to not only design a visually appealing Facebook page, but also create a forum for young patients, their families and friends, doctors, and volunteers to come and share their stories, promote fundraising events, and RAISE MONEY!

Stay tuned for WAG’s launch of “The Young Faces of ALS” Facebook page, and be sure to ‘Like’ it. In the meantime you can visit ALS TDI, or The Young Faces of ALS to learn more or donate. Or, even easier, text ENDALS to 20222 to donate $5, every cent helps.

Morgan

1 comment:

  1. Hey Morgan,

    If you need any content or stuff to include with your blog, let me know. We'd be happy to give you the hyperlinks and collateral you need to help.

    Mike Shannon
    ALS TDI
    mshannon@als.net
    415-694-0663

    ReplyDelete